Osteogenesis Imperfecta (OI)

Stijn and Chedda have Osteogenesis Imperfecta, also called brittle bone disease or OI. People with OI are affected in very different ways. Most people with OI experience frequent pain and undergo between 10-300 fractures in a lifetime. Because OI is rare, limited funding is available for research to improve the quality of life for people like Stijn, Chedda and 500.000 people who live with OI worldwide.

Care4BrittleBones is committed to a better quality of life for people with OI

Brittle Bonecast Podcasts by our ambassador Michaël Roele

Click on one of the below links to listen to the podcasts.

Brittle Bonecast #1: Road to Quality of Life 4 OI (Dagmar Mekking)

Brittle Bonecast #2: Stem cell treatments (Cecilia Götherström)

Brittle Bonecast #3: The Key4OI Project (Anton Franken, Marjolein Verhoef and Wouter Nijhuis)

Brittle Bonecast #4: Unbreakable spirit with Sparsh Shah

Brittle Bonecast #5: The history of OI science with Kathleen Montpetit

Brittle Bonecast #6: Living with OI (Iris van Wijk)

Brittle Bonecast #7: Ute Wallentin about living with OI

Brittle Bonecast #8: The minister of disability affairs, Rick Brink