The conference is hosted by a unique coalition of the OI-organizations (OIFE and OIF) and medical professionals (ERN – BOND) coordinated by the Foundation Care4BrittleBones. It demonstrates the spirit of the Conference: bringing the best ideas, the deepest scientific insights and smartest innovation together to improve Quality of Life for OI.
Osteogenesis Imperfecta (OI)
Stijn and Chedda have Osteogenesis Imperfecta, also called brittle bone disease or OI. People with OI are affected in very different ways. Most people with OI experience frequent pain and undergo between 10-300 fractures in a lifetime. Because OI is rare, limited funding is available for research to improve the quality of life for people like Stijn, Chedda and 500.000 people who live with OI worldwide.
Care4BrittleBones is committed to a better quality of life for people with OI