Osteogenesis Imperfecta (OI)
Stijn and Chedda have Osteogenesis Imperfecta, also called brittle bone disease or OI. People with OI are affected in very different ways. Most people with OI experience frequent pain and undergo between 10-300 fractures in a lifetime. Because OI is rare, limited funding is available for research to improve the quality of life for people like Stijn, Chedda and 500.000 people who live with OI worldwide.
Care4BrittleBones is committed to a better quality of life for people with OI
Conference Quality of Life 4 OI – VLOGs
Find below 3 inspiring VLOGs by our ambassador Danielle de Bakker in which she gives you a brief insight in her visit to the conference Quality of Life 4 OI.
Brittle Bonecast Podcasts by our ambassador Michaël Roele
Click on one of the below links to listen to the podcasts.