All 14 Advisory Board members have been chosen carefully based on their expertise and reputation for collaboration. They are acting in the best interest of people with OI worldwide, irrespective of their own discipline or national background.
The Scientific Advisory Board is composed of a variety of relevant disciplines with expertise in genetics, endocrinology, bone metabolism, paediatrics and rehabilitation. All scientific advisory board members have an outstanding professional reputation and a proven track record of working closely with the OI-community over many years.
All members of the OI Advisory Board have OI themselves and have a good general knowledge of the disorder as well as a broad network.
The Advisory Boards advise us on which research projects we should prioritise. We also ask their steer on Research Strategy and communication about research.
The Scientific Advisory Board
Fleur van Dijk
Netherlands / UK
Expertise Center for Adults, Isala
North West Health Care, London
Endocrinology Childrens’ Hospital
University of Cologne
Children’s Hospital University of Helsinki
Lena Lande Wekre
Senior Consultant Rehabilitation
TRS National Resource Centre for Rare Disorders
University of Southern Denmark (Odense)
Children’s Hospital University of Zurich
Molecular Medicine, Biochemistry Unit University of Pavia
The OI Advisory Board
The Scientific and OI Advisory Board members and ways of working will be updated before the start of the next proposal round in 2019 to reflect the broader international spectrum covered by Care4BrittleBones and to demonstrate our partnership with national patient organisations.
Bruno van Dijck