Care4BrittleBones aims to improve the quality of life of people with Brittle Bones Disease

Advisory Boards

All 14 Advisory Board members have been chosen carefully based on their expertise and reputation for collaboration. They are acting in the best interest of people with OI worldwide, irrespective of their own discipline or national background.

The Scientific Advisory Board is composed of a variety of relevant disciplines with expertise in genetics, endocrinology, bone metabolism, paediatrics and rehabilitation. All scientific advisory board members have an outstanding professional reputation and a proven track record of working closely with the OI-community over many years.

All members of the OI Advisory Board have OI themselves and have a good general knowledge of the disorder as well as a broad network.

The Advisory Boards advise us on which research projects we should prioritise. We also ask their steer on Research Strategy and communication about research.

The Scientific Advisory Board

Fleur van Dijk
Genetics
Netherlands / UK

Expertise Center for Adults, Isala
UMC Groningen
North West Health Care, London

Oliver Semler
Paediatric
Germany

Endocrinology Childrens’ Hospital
University of Cologne

Outi Mäkitie
Paediatric
Finland

Children’s Hospital University of Helsinki

Lena Lande Wekre
Senior Consultant Rehabilitation
Norway

TRS National Resource Centre for Rare Disorders

Lars Folkestad
Endocrinology
Denmark

University of Southern Denmark (Odense)

Marianne Rohrbach
Endocrinology
Switzerland

Children’s Hospital University of Zurich

Antonella Forlino
Genetics
Italy

Molecular Medicine, Biochemistry Unit University of Pavia

The OI Advisory Board

The Scientific and OI Advisory Board members and ways of working will be updated before the start of the next proposal round in 2019 to reflect the broader international spectrum covered by Care4BrittleBones and to demonstrate our partnership with national patient organisations.

Margriet Crezee
VOI
Netherlands

Ute Wallentin
DOIG
Germany

Eero Nevalainen
Finland

Rebecca Tvedt
ERN-BOND
EPAG

Bruno van Dijck
ZOI
Belgium

Therese Stutz-Steiger
SVOI
Switzerland

Leonardo Panzeri
ASITOI
Italy

Benedicte Alliot
AOI
France