Advice people with Brittle Bone Disease
We find it important that people with Brittle Bone Disease have a voice in determining what research is supported. We achieve this by working closely with the Patient's Organisation for Osteogenesis Imperfecta (in the Netherlands: VOI. For projects in other countries we are aiming for a comparable collaboration with the national patients' organisation). For each research proposal, we will be asking the view of the patient's organisation and will take it into account in the decision making.