Conference QualityofLife4OI (Amsterdam 22-25 Nov 2019)
The Conference provides a platform to engage about clinical practice and research for people affected by Osteogenesis Imperfecta … Read more
We hope everyone is looking forward to the festive season!
The end of the year is a great opportunity to thank everyone for their contributions. Therefore a BIG, BIG THANK YOU to all our donors and those who have raised funds. We are deeply grateful for each and every donation and initiative!! We thank all the clinicians and researchers who have done difficult and complex research and persisted through struggles to come to insights nobody has had before about OI. We’d also like to thank our volunteers in the coreteam, our ambassadors and our partners – all we accomplished with the foundation is thanks to you!
Further more we would like to introduce you to our brandnew website and invite your feedback.
We will also invite you to register for some 2019 activities, like
our first Fundraising Webinar (8 February)
a webinar about occupational therapy with Kathleen Montpetit (21February)
the newsletter for the Conference Qualityoflife4OI (22-25 November, Amsterdam)
the new professional network for psychosocial aspects of OI
Hope you will enjoy reading this newsletter and find a few ideas that will enrich your year 2019! Happy holidays, everyone!
Warm regards,
Dagmar Mekking (CEO Foundation Care4BrittleBones)
dagmar.mekking@care4brittlebones.org
The Conference provides a platform to engage about clinical practice and research for people affected by Osteogenesis Imperfecta … Read more
Recent research in several countries has brought to the surface that OI can have psychosocial impact on various … Read more
We will be holding a Fundraising webcast with lots of useful tips how to effectively fundraise for research … Read more
We are looking forward to the next webinar directed to occupational therapists and physical therapists. This time Kathleen … Read more
One of the 4 goals of our foundation is to inform people about OI and OI research. In … Read more