Interview with Rick Brink
‘When something happens, I know that I will be aided well and swiftly’ Minister for disability affairs, Rick … Read more
OI Sing Along – 27 June 2020
HAVE A LOOK AT THE VIDEO One of the best ways to connect any community is music! We … Read more
Video Conference: How to improve Quality of Life for OI in 2020
You are invited to an open videoconference to discuss: “How to improve Quality of Life for OI in … Read more
Dam2Dam Run – 20th September 2020
Join us in running for stronger bones during the Dam tot Dam Run 2020. The event will take … Read more
Wandeltocht – 19 September 2020 – Wheel & Walk for Stronger bones
10 KM on wheels or walking surrounded by great people. Join us in wheeling & walking for stronger bones … Read more
Zandvoort Circuit Run – 29th March 2020
Have you ever dreamt of running on the circuit of Zandvoort? Now is the chance! Join us in … Read more
CPC Den Haag – 8th March 2020 – Run & Walk for stronger bones
Join us in running or walking for stronger bones during the CPC 2020 in Den Haag. The event … Read more
Damloop 2019
Are you up for a sportive event and want to join our group of runners, walkers and wheelers? … Read more
Annual Report 2018
2018 has been a year with great progress particularly in the areas of research and collaboration. We are looking … Read more
Research News: Living with OI
Increasingly people with OI and health care providers realise that living with OI can have an impact well … Read more
Crowdfunding by research4oi.org
Someone told me this week: “Everyone can organise a 5 km walk, run or wheeling event for fundraising.” … Read more
Fundraising made easy
When Care4BrittleBones started in 2012, the founders were completely new to fundraising. Today we have raised more than 1 Million … Read more
News from our network
PHYSICAL REHABILITATION NETWORK: We are very pleased to announce that Kathleen Montpetit has kindly accepted to lead the Physical … Read more
Conference Quality of Life 4 OI
Conference “Quality of Life 4 OI” (22-25 November 2019) is gaining momentum. We are so grateful that we … Read more
Conference QualityofLife4OI (Amsterdam 22-25 Nov 2019)
The Conference provides a platform to engage about clinical practice and research for people affected by Osteogenesis Imperfecta … Read more
A new knowledge sharing network of professionals interested in the psychosocial aspects of OI
Recent research in several countries has brought to the surface that OI can have psychosocial impact on various … Read more